Resources
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When
a Baby Dies A brochure in
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1. SIDS /Infant
Death Survival Guide:
Written by Joani Nelson
Horchier & Robin Rice Morris, the SIDS Survival Guide is a comprehensive
guide that provides “Information and Comfort for Grieving Families
and Friends & Professionals Who Seek to Help Them.” A tool for
parents to know they are not alone, this book is filled with personal
and practical advice not only for grieving families but a guide
for prospective parents. English and Spanish versions.
Contact sidses@aol.com
for more information.
2. SIDS Resource Guide
Download this resource
guide from SIDS MA in
PDF
3. Support Groups
SIDS Mid-Atlantic
Support Group
One on One PeerContacts
703-933-9100
info@sidsma.org
For families experiencing
the sudden death of an infant. Parents, Grandparents, day care
providers and friends welcome.
Meetings are held the
first Thursday of every month from 7:00pm to 9:00pm at McLean
Presbyterian Church, 1020 Balls Hill Road, McLean, VA.
Directions- Take
exit #44 off the Capitol Beltway onto Route 193, Georgetown Pike.
Go East on Georgetown Pike. Take the first Right turn onto Balls
Hill Road. Go approximately ¼ mile until you see the church on
the right. Enter the church from the front. The meeting room is
to the right of the sanctuary.
Virginia SIDS Alliance
www.vasids.org
Support groups in Richmond,
second Tuesday of each month
804-627-5350
Support Groups in Williamburg,
second Wednesday of each month
757-865-2561
Support Groups in Tidewater,
last Thursday of each month
757-547-9334
Charlottesville VA "Empty
Arms" 434-974-9313
Fredericksburg VA
"Healing Through Support" 540-741-3268
Southwest VA
276-676-7115 or 276-523-8641
Annapolis MD
410-863-8391
MIS (Miscarriage
Infant Death and Stillbirth) support groups
301-460-6222
MISS www.dcmissfoundation.org
Infant Loss Grief Resources
Fairfax County Grief
Support Program
8348 Traford Lane
Springfield, VA 22152
703-866-2100
Wendt Center for Loss and Healing
4201 Connecticut Ave NW Suite 300
Washington, DC
202-624-0010
Cubby LaHood
Isaiah's Choice, MIS in Maryland
301-681-5784
The Counseling Center of Fairfax
10470 Armstrong St.
Fairfax, VA 22030
703-385-7575
Haven of Northern Virginia
4606 Ravensworth Road
Annandale, VA
703-941-7000
March of Dimes
2700 S. Quincy St
Arlington, VA 22206
703-824-0111
www.marchofdimes.com
March of Dimes Resource Center
1-888-modimes
Center for Well Being
311 Park Ave Suite 1A
Falls Church VA 22046
703-395-4980
Capital Hospice
Grief and Loss Services
703-538-2064
Miscarriage Infant Death and Stillbirth Support Groups
Meetings in Maryland & Virginia
301-460-6222
703-356-0353
Spanish 202-966-1311
Subsequent Pregnancies
703-222-2971 or 301-530-1094
Subsequent Pregnancies
703-583-1503 or 301-530-1094
Northern Virginia Fetal Infant Mortality Review Project
703-776-6778
Compassionate Friends
703-754-8982 or 202-244-1026
In Loving Memory
Support Group for Parents with no Living Children
703-435-0608
SIDELINES
A support network for pregnant women confined to bedrest
540-891-5292
Center for Multicultural Human Services
703-533-3302
Parents of Down Syndrome Support Group
703-989-1758
OTHER RESOURCES
Haven of Northern
Virginia
Offers a variety of groups for adults dealing with dying and/or
a death in the family, as well as individual support in person
or over the phone.
703-941-7000
Hospice of Northern Virginia
Provides many bereavement support groups throughout the Washington,
DC area. Offers assistance to all members of the community whether
or not they utilized Hospice services.
703-538-2064
Parent to Parent of Virginia
Dana Yarborough
6 North Sixth St., #403
Richmond, VA 23219
1-888-604-2677
PTP of VA @aol.com
National Sudden Infant
Death Syndrome Resource Center
NEW
The following three brochures are available in
electronic format only on the National SIDS/Infant
Death Resource Center Web site at www.sidscenter.org
:
- These Tests Could Save Your Baby's Life: Newborn Screening
Tests
- The Health Professional's Guide for Brief Prenatal Discussion
with Parents
- Parent's Guide for Brief Prenatal Discussion with Health Professionals
These resources were produced by the National Newborn Screening
and Genetics Resource Center. The National Newborn Screening and
Genetics Resource Center (NNSGRC) is a cooperative agreement between
the Maternal and Child Health Bureau (MCHB),
Genetic Services Branch and the University of Texas Health
Science Center at San Antonio (UTHSCSA),
Department of Pediatrics.
The National Newborn Screening and Genetics Resource Center
provides information and resources in the area of newborn screening
and genetics to benefit health professionals, the public health
community, consumers and government officials.
For more information contact the National Newborn Screening
and Genetics Resource Center at(512) 454-6419.
www.sids-network.org
An online resource for parents whose babies died from SIDS with
links to other infant loss resources
TherapistUnlimited.com
A referral service for
mental health and substance abuse services
www.compassionatefriends.org
www.griefcompanion.org
A website of the Bruderhof,
a Christian community
A Place to Remember
www.aplacetoremember.com
www.parentsplace.com
March of Dimes
www.marchofdimes.com
Healthy Mothers Healthy Babies
www.hmhb.org
American Academy of Pediatrics
www.aap.org
www.shakenbaby.com
The Shaken Baby Alliance Online Support Group
1-877-end-sbs
www.climb-support.org
Center for Loss in Multiple Births
www.sidelines.org
Sidelines, a support network for pregnant women on
bedrest
www.centering.org
Centering Corporation
Catalog of Grief Resources
402-553-1200
www.funerals.org
Funeral Consumer Alliance
Resources for information on states’ legislation regarding funerals
afghans4angelsMD@angelic.com
Afghans for Angels
Provides blankets and burial outfits to hospitals
Toni Kimmel
Box 805 Burtonsville, MD 20866
301-498-9691
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